2 Amendments of Alojz PETERLE related to 2008/0218(CNS)
Amendment 21 #
(5) include in the national plans provisions designed to ensure equitable access to high quality care, including diagnostics, treatments and orphan drugs, to all rare disease patients throughout their national territory with a view to ensuring equitable access to quality care on the basis of equity and solidarity throughout the European Union following the principles agreed in the High Level Pharmaceutical Forum paper "Improving Access to Orphan Medicines for all Affected EU citizens".
Amendment 39 #
(c) sharing Member State's assessment reports on the therapeuticclinical added value of orphan drugs at EU level, in order to minimise delays for access to orphan drugs for rare disease patients;