3 Amendments of Fiona HALL related to 2008/0218(COD)
Amendment 8 #
Proposal for a recommendation
Recital 5
Recital 5
(5) Because of their low prevalence and their specificity, rare diseases call for a global approach based on special and combined efforts, including in partnership with third countries such as the United States, to prevent significant morbidity or avoidable premature mortality, and to improve quality of life and socio-economic potential of affected persons in developed and developing countries.
Amendment 12 #
(3a) foster knowledge-sharing and cooperation between researchers, laboratories and research projects in the EU and similar institutions in third countries, to bring global benefits not only to the EU but also to poorer and developing countries, which are less well placed to provide resources for research into rare diseases;
Amendment 14 #
(c) sharing Member State's' assessment reports on the therapeuticclinical added value of orphan drugs at EU level, in order to minimise delays for access to orphan drugs for rare disease patients;.