8 Amendments of Frédérique RIES related to 2018/2108(INI)
Amendment 3 #
Motion for a resolution
Citation 13 a (new)
Citation 13 a (new)
- having regard to the Recommendations on Rare Disease European Reference Networks of the European Union Committee of Experts on Rare Diseases (EUCERD) of 31 January 2013 and its Addendum of 10 June 2015,
Amendment 47 #
Motion for a resolution
Recital J a (new)
Recital J a (new)
Ja. whereas patients are insufficiently informed of their cross-border healthcare rights and, in any case, fewer than two Europeans out of ten consider themselves to be well informed on the relevant rights, according to a Eurobarometer survey in 20151 a; _________________ 1a Special Eurobarometer 425: 'Patients’ rights in cross-border healthcare in the European Union' (2015)
Amendment 100 #
Motion for a resolution
Paragraph 7
Paragraph 7
7. ANotes that certain prior authorisation systems appear to be disproportionately burdensome and/or restrictive with regard to the number of applications concerned each year; asks the Commission to continue the structured dialogues with Member States, to simplify matters and providinge greater clarity regarding prior authorisation requirements;
Amendment 118 #
Motion for a resolution
Paragraph 12 a (new)
Paragraph 12 a (new)
12a. Calls on Member States to take into consideration the difficulties faced by low-income patients who have to pay for cross-border treatment in advance;
Amendment 125 #
Motion for a resolution
Paragraph 15
Paragraph 15
15. CRecognises the crucial role of NCPs in supporting patients with regard to administrative formalities and helping them make informed decisions in relation to healthcare; calls on the Commission and the Member States to invest furthersufficiently in the development of highly accessible and clearly visible NCPs which provide user- friendly information for patients and health professionals;
Amendment 132 #
Motion for a resolution
Paragraph 16
Paragraph 16
16. Recommends that the Commission develop guidelines on the functioning of the NCPs and further, in particular to facilitate and significantly improve the structural exchange of information and practices between them, and to establish a link between NCPs and sources of information and expertise available within the Member States;
Amendment 136 #
Motion for a resolution
Paragraph 17
Paragraph 17
17. Calls on the Member States to provide sufficient funding for their NCPs to be able to develop comprehensive information, and asks the Commission to intensify cooperation betweenamong the NCPs across the Union;
Amendment 157 #
Motion for a resolution
Paragraph 22
Paragraph 22
22. Proposes that the Commission should open a fresh call for the development of new ERNs and should continue to support the development and scaling up of the ERN model, in order to overcome geographical differences and gaps in expertise; stresses, however, that any extension of ERNs must not undermine the operation of existing ERNs during their initial phase;